Tuesday, 1 December 2015

The Telethon gives to medical research

Dear Val and Malc,
Hope you are fine. Here in St Nazaire everything ok, as you saw on FB Laurent is very happy (and also his parents). Finally found a school where the children and there well being are the most important. A mix of Waldorf, Montessori and Freinet (I always say Freixenet, the champagne).
But there is something else going on this week. It is the week of Téléthon. And a very special one this year, Sethi and his familly is ambassador this year with 3 other children. So you can see Sethi everywhere. On posters (even in St Nazaire!), internet and on Televison. This whole week you can see him but this weekend, from Friday evening of, he will be very present on the french tellie. 
For us, it is very touching to see them.
I know it is a very expensive month, and you all have donated a lot the last months but please give also money to téléthon. Sethi and Laurent and many other children need it. We are still waiting for the results of the genetic research. Till then Laurent has no option to try things out (meds, therapie etc).
Afm means a lot to us. Support in every way. It is a great organisation and thanks to them, so many children are helped. So, here the internetadres where you can do a 'don'  http://www.afm-telethon.fr/ . You can also support the local activities organised this weekend of course. Only as in St Nazaire we are not sure that the village Téléthon can continu du to the attacks. If yes, then they are not allowed to have crowds stopping, so no animation.
Thanks a lot and have fun,
Miranda xx
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