I want to ask you and all the readers of Tag online their help. It is very urgent! Last year we met a fantastic mum, Azizah, with a great son, Sethi. Sethi is 3 years old and suffering of Wiskot Aldrich syndrome. Sethi is fighting for his life every day and mum is putting all her energy to find a bone marrow donor who can heal her son. If she doesn’t find one, Sethi has no future. Sethi has treatments every week, is not able to go to school, not meeting other children because of the risque of infection and in pain. You can read everything about the illness and Sethi on
http://princesethi.wix.com/sethi-petit-prince. Also how to become a donor!
There is also an event, Randonnée Quad et soirée au profit de l'association Sethi Petit Prince, the 28th of septembre. As a friend, I’m desperate and I can’t do more than to inform people. I hope you will put this online and that many people are going to react. Many thanks, Miranda
Val says the first thing that is needed is to give some of the information which is on the site in English, bearing in mind TAG has generally English speaking readers, Miranda or a TAG reader with good French needs to precis the relevant information and give it in a format to affect our readers. My French is not good enough especially with medical terms included but when a small child's life in our midst is in danger I am sure the English speaking community would like to help and show their support.
Sorry Val, I forgot to mention that there is a small film in English about Sethi and his ilness,http://www.youtube.com/watch?v=eKcsThNazp4VAL says What TAG can do is give that video link on a regular basis until someone is found
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