Sethi: petit prince

Sethi and mum Azizah

Taglines has featured the story of Sethi many times over the years. The little boy suffers from a rare condition which attacks the production of bone marrow and hence healthy blood and readers have followed his story and offered help where possible. At four years old in a Paris clinic his marrow was removed then he was treated with chemo-therapy and kept in a sterile bubble before the marrow was replaced. Now six he has started at normal school and loves being a pupil. But Sethi is not cured and needs blood transfusions every three weeks, but his life is transformed. This weekend he is an ambassador for the Telethon which raises money for research into such rare conditions and provides help where it is needed.
We will be contributing by having our car washed by the Laguepie pompiers (provided their karchers are not frozen). There are opportunities to contribute at an event near you.
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Sethi

Good news! Sethi has left the hospital now for a few weeks. He is staying with his parents in an appartment 300m from the hospital for the next few months. He is doing ok but they still don't know how the next few weeks will be. Bloodresults are not great but they know that around 50% of his bonemarrow has been changed. Every week he has to go back for one day to the hospital and this is a nightmare for him. Every week it is more difficult to get him there. The poor one. 

This weekend three students are going to collect money for the association on the market of Montauban, see http://www.ladepeche.fr/article/2014/04/04/1855876-montauban-trois-etudiants-mobiliseront-marche-aider-sethi.htmland https://www.facebook.com/SethiPetitPrince/photos/a.227786827345765.1073741827.168664126591369/259921780798936/?type=1&theater. 
 So, if any of the readers are going to the market in Montauban, please stop bij this stand to donate something!
 Miranda
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Sethi starts treatment, written by his Mother Azizah

For all my english followers, Today sethi seems to be in better shape! He had a double central line installed on friday and a bone marrow aspiration and a bone biopsy so it is difficult for him to walk and to sit . He had a palelets transfusion on friday and went to 100 palelets! Yesterday he had 60, we will see today! Waiting for the blood test results. Hg is 9.2 We are going to spent the night and the all day tomorrow at the ICU for collecting the bone marrow cell in his blood. And then tomorrow night sethi will enter in his steril room and will begin to have a full chemo. Thank u so much for being with us during our fight, and sorry for my english 

Zumba and Hip -Hop for Sethi and other poorly children

Dear Val
Thank you for putting information of our event on TAG. Here is a poster advertising the charity fundraiser which we are holding next month. Funds are being raised in support of Sethi, to assist with medical bills,  and also other other ill children in the area (funds to be distributed by the mairie).

Could you please put on Kim's new phone number 0563242172 as the one I sent you previously is her old one.  She can also be contacted by email on kailsley@hotmail.com

This Thursday morning, 28th November, 10.30, we are having a meeting at La Salle to discuss progress with organising the event. If anyone would like to come along to take part,  or to donate items for the raffle or tombola,  please contactKim:kailsley@hotmail.com 0563242172
Thank you!
Love Debbie